I have sickle cell anemia, and i would like to know how to get a foundation started so people can be more aware of this serious disease.
Hey, sickle cell is a very serious disease that affects many. My prayers go out to you. The first thing I'd say is, DO YOUR RESEARCH. Before I started my foundation I enlisted the help of some really great people who made sure that there was a need and aN audience for my foundation. By that I mean, I had to make sure there were not other similar foundations in the area that were striving to accomplish my same mission. With this being said, I would look at what foundations are already in your area. I would first consider partnering with a already established foundation that deals with Sickle Cell.
See, as I'm finding out it's tough to start and manage a foundation. Foundations aren't owned and operated by one person, they are the property of and for the good of the general population. So it requires true public support. I've had to hire people to design programs, manage our offices, and most importantly write grants and solicit public support/funding. IT'S HECTIC. But it is rewarding.
If you are passionate about starting a foundation I encourage you to reach out to my interim Executive Director, Rhonda Foxx...shoot her an email at firstname.lastname@example.org and she will probably be able to send you some additional information. My foundation is a community resource so we do love to see others engage in civic acts. Anything we can do to help, just let us know!
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